AUTHOR=Murphy Melissa M. , Colquitt Gavin , Ryals Paige S. , Shin Katie , Kjeldsen William C. , Maitre Nathalie L. 

TITLE=Caregiver and clinician perceptions of barriers to cerebral palsy healthcare—mixed methods findings and systems change recommendations

JOURNAL=Frontiers in Public Health

VOLUME=Volume 13 - 2025

YEAR=2025

URL=https://www.frontiersin.org/journals/public-health/articles/10.3389/fpubh.2025.1644144

DOI=10.3389/fpubh.2025.1644144

ISSN=2296-2565

ABSTRACT=IntroductionThe present paper is the second in a series of exploration phase efforts toward building and sustaining patient-centered agendas for research and clinical care in CP.MethodsFocus group and surveys were used to assess perspectives of caregivers of young children with CP (N = 19) and clinicians (N = 102) regarding CP-specific medical care priorities and barriers and facilitators to high quality CP-focused care in Georgia, US.ResultsQualitative and quantitative analysis reveal areas of areas of synergy and discrepancy between the two stakeholder groups.DiscussionTogether stakeholder responses converge on the notion that (1) empowering caregivers to better utilize the resources that do exist and (2) building provider capacity and confidence in efficient delivery of high-quality CP care is critical to drive system changes for improving access and outcomes across the lifespan. Proposed action items for systems change arise from the convergence of caregiver and clinician responses.